Things that make my life easier/better

-
I work on the basis I want everything to be as normal as possible. It winds me up if I can't do something,
so with a lot of research from my husband and myself, we have come up with lots of solutions  
(which don't look like they belong in hospital).
The whole not-looking clinical thing is very important to me. I have well and truly had enough of hospitals. I am
young and I want things to look young and pretty. I have enough problems between my physical
problems, not being able to drive and my crushing anxiety now that I don't want constant reminders!
I know I was in a very privileged situation with a payout from my critical illness cover and being
disabled is ridiculously expensive - see my post "Keeping busy" and my article "Are you covered?"
But a lot of it, but not exclusively (can you tell I used to be a lawyer!) is reasonable and
would be handy for everyone. Indeed, I wish I’d thought about a flask and the Ginseng
tablets when the children were babies!!

Comments

Post a Comment

Popular posts from this blog

About me

-
To understand me and the changes to mine and my families life you would have to know that pre brain hemorrhage/children I was a solicitor. Before the brain hemorrhage I was a very active mum. I want to blog now because I hate being bored, I want to help other disabled young people - this is not a position you expect to be in in your 30’s (!) and I hope it will be interesting to others. A bit about me: I am 37 year old wife and mummy to a 11 & 9 year old. I was going to go into lots of detail but suffice to say I had a big brain hemorrhage caused by an AVM (Arteriovenous Malformation) causing a stroke - type 'AVM' into a internet search engine if you are interested. I was born with it and I could have had a bleed at anytime. Mine bled and now I spend all day/every day striving for 'a semblance of normality'... Yes, it was rubbish and yes, I wish it hadn't have happened but it did and there isn't anything I can do about it. I do
Read more

Like mother, like daughter ...

-
Image
  My daughter (11) wrote the following speech for her class at school and her teacher kindly sent it to me. I think what I have been whinging about (a lot obviously ) has gone in: 'Hi my name is x and I am here to talk to you about disability discrimination. The reason I am going to talk about this subject is I am very passionate people know what disability discrimination is. All over the world people are building new restaurants and hotels, but these new amazing buildings are forgetting about laws that were put in place to help the disabled access for these buildings. These buildings are still allowed to open due to them finding ways around the law. I am going to tell you a short story about something that happened to my mum. One morning my mum was going out and so my mum called a taxi. When she was saying goodbye to her PA/helper the taxi driver would only speak to my mum's PA, completely ignoring her presence. After a while my Mum had, had enough. She told the driver she
Read more

The many joys of being disabled: Random Sickness and how I wouldn't recommend it.

-
Image
I spent years trying to lose weight. Years. The year before I got married, I even went to a Rosemary Conley fitness club. I lost half a stone and announced to my fiance that this would be the skinniest I’d ever look. “Well that was false advertising,” he stated a few years later. Anyway. We’re still married. When I had my brain haemorrhage, I went down 3 stone. Oh, the irony. Every cloud and all that… Although I was the slimmest I’d ever been, I wouldn’t recommend it. I was incredibly, possibly unhealthily, thin. And the fact was, it happened, because after my brain bleed I was randomly sick most days for over a year. After a year, I was lucky (I jest) enough to be randomly sick every other day or so. Then, slowly I progressed to weekly random vomiting, onto monthly, every few months and finally the random puke stopped happening at all. Nausea and vomiting can be a hideous - yet common - side effect of the kind of brain haemorrhage and stroke I suffered. For over two years my best fri
Read more